Patient Stories

AARAN’S STORY – Leaky Aortic Valve

“The research conducted by the Baird Institute is truly remarkable, and I was honoured to be a part of it.”

Late one July night in 2017, I crawled into bed, and as my body relaxed, I felt a thump from the inside of my chest. It was my heart, of course. Over the next two weeks, I noticed this irregular thump more frequently. Initially, I thought it was due to my coffee intake. As a freelance camera operator, I often had to wake up early and work long days, requiring extra caffeine to get going. I wondered, ‘Should my heart take such a big beat, and more importantly, is this normal?’ I wasn’t one to hesitate consulting my GP, who immediately suspected something was wrong.

I spent 24 hours wearing a Holter monitor and underwent an echocardiogram.

I was promptly referred to cardiologist Prof. Michelle McGrady at Central Sydney Cardiology. To my surprise, I discovered I had a leaky aortic valve. This meant the valve wasn’t closing properly, allowing blood to flow back into my heart.

Surgery was inevitable; it wasn’t a matter of if, but when.

Fast forward to May 2024, during a routine check-up with Prof. McGrady, I learned that the size of the dilation had worsened. There was more regurgitation, and my heart was working harder to expel the excess blood.

To clarify, apart from the irregular heartbeat, I had no other symptoms. Prof. McGrady referred me to surgeon Prof. Paul Bannon. In contrast to anyone I’ve ever met, Prof. Bannon made me feel completely at ease about having heart surgery. In fact, I was eager to undergo the surgery and resolve this issue.

Through this introduction, I discovered The Baird Institute. I was asked to participate in a trial investigating stiff heart syndrome. This meant taking a supplement or placebo in the month leading up to surgery and undergoing a biopsy during surgery while my valve was being replaced. The research conducted by the Baird Institute is truly remarkable, and I was honoured to be a part of it.

Those initial days in the Intensive Care Unit were both mentally and physically demanding, and few things can adequately prepare you for such a challenging experience. However, thanks to the exceptional skills and dedication of Prof. Bannon’s team and the brilliant staff on the Cardiovascular Ward, I was discharged and back home within five days of my surgery.

The Baird Institute is a leading research centre dedicated to pioneering advancements in heart and lung surgery. It relies entirely on private donations to fund its research activities conducted at the Charles Perkins Centre located at the University of Sydney next to RPAH. The more they learn, the greater their positive impact on people’s lives, just like the impact they have had on mine.

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Honour a Loved One

  • Fundraise in memory of someone special to you.

Challenge Yourself

  • Run a marathon
  • Do a long bike ride
  • Walk 10km each day for a month
  • Do 50 sit ups every day for a week
  • Join an organised event such as the City to Surf

Organise a community event

  • Have a backyard sausage sizzle
  • Host a trivia night

Seek sponsorship to help you quit those bad habits

  • Give up smoking
  • Refrain from alcohol for a month or more

Celebrate Through Giving

  • Choose to give on your birthday: Instead of giving you gifts, ask your friends and family to donate to The Baird Institute.
  • Say “I do” to improving the lives of heart and lung patients: Invite guests to donate to The Baird Institute on your wedding day
  • Turn anniversaries or personal milestones into fundraising events.

Create a CrowdRaiser on GiveNow

  1. Go to CrowdRaiser for The Baird Institute.
  2. Click on the button “Fundraise for this cause” – just under the header image.
  3. Create your Crowdraiser. Fill in the requested details.
  4. Customise your campaign. Add images and messages to make your CrowdRaiser unique.
  5. Share the link to your fundraising page via email, social media, or any way you like.
  6. Let us know via [email protected] that you have created a fundraiser so we can say thank you.

Join a community passionate about making a difference. GiveNow provides a dedicated platform for Australian charities, ensuring your efforts directly support our mission.

Start a Facebook Fundraiser

  1. Go to Facebook fundraisers.
  2. Click on the blue button – “Select nonprofit”
  3. Search for and select The Baird Institute
  4. Set your fundraising target
  5. Choose your campaign end date & a title for your Fundraiser
  6. Personalise your fundraiser: Use the existing wording and photos or choose your own.
  7. Click on ‘Create’.
  8. Invite friends and family. Share the link for your fundraiser and encourage others to contribute.
  9. Let us know via [email protected] that you have created a fundraiser so we can say thank you.

Celebrate where your friends and family connect. Leverage your social network to make a real impact.